Sunday 17 February 2013

OVERCOMING LONELINESS

OVERCOMING LONELINESS




     "What happened to all those people who visited me in hospital?"  
     "Why doesn't Joanna ever phone anymore...?"
     "You'd think by the way that Vince has been avoiding me that he doesn't want to be my boyfriend anymore."
     "I wonder if my wife really will leave one day.  She threatens to all the time."

     After a brain injury, loss of friendships, relationships or closeness with family may very well be one of the greatest difficulties for survivors.  That an ABI causes medical and physical problems is expected but having one can change the way you relate and act toward others.  Understanding this is important.  From that realization we can move on to discover ways to hang onto and even improve old relationships.  It's also a starting point to learn how best to create new ones.  
     It's inevitable that we will lose some important relationships but the ones that endure says much about the people they are.  Our peers, family or work mates react uniquely to illness or change in us and those who don't disappear show us the strength and caring that they are capable of.  This is a good situation to remember that old adage, 'We find out who our friends are!' 
     
     While members of our ABI group were being interviewed for a video, I heard many answers to this question:  "What do you appreciate about this weekly social group?"  Many talked about the trust, companionship and involvement in fun outings or events in our meeting place.
     But the ones that stood out most this week were those that created some stark imagery for me.  The answers went something like this,"I can be among people instead of staring at my four walls and the TV."  or "It's an escape from arguing with my mother all the time."  "Sometimes I feel so alone and seeing my friends here once a week is something I look forward to."
     Loneliness...  It's everywhere among the group of us.  Thankfully for myself, I have always been somewhat of a loner, painting at my easel, reading and writing.  I seem to function well on 4 or 5 visits each week whether here at home or in someone else's space.  It's important to remember that I no longer work so that former 8 hours each day is now spent in my own company and admittedly, I kind of enjoy the quiet.   I choose to stay in quite a lot but like to go to a movie once in a while or maybe visit a gallery or an event with a friend.  I prefer to shop alone and in the old days I needed the alone time I had while hiking.  However, if it's much more often than those 4 or 5 visits each week, I tend to get overwhelmed and fatigued.  The same goes for not getting enough people time, though.  Then I tend to feel a bit down until getting a 'fix' of a good chat.
     Now back to those who are more social and extroverted than I am.  Many of these folks worked in the public eye or attended school with many fellow students.  They enjoyed daily lunches with coworkers, attended board meetings or laid on crowded beaches with friends many weekends.  I call them social butterflies (very unlike me).   They may have lost those everyday social skills we take for granted.  Possibly, they anger more easily and frighten those who knew them in their calmer years.  Or like me, they may have become much more self conscious and awkward.  Certainly fatigue, so common in brain injury, changes the socialization process for so many.  One can simply lose relationships when they find they can't keep up with their peers anymore.  Weekend trips or weekday evening get-togethers become so difficult when one needs to rest frequently, is sensitive to noise or the chaos of several people talking at once.  Focus is such a common loss and a stereo or TV playing, friends talking with us and then a phone ringing are now distractions.  Before an ABI, this was seen as the normal chaos of life.  Now it's something overwhelming to be avoided or tempered in the best way possible.
     I would like to see more social groups spring up across this country, offering survivors a place to fit in and enjoy the company of others.   I am fortunate to have a few good friends and enjoy my family but within our own social group, I have met some fascinating and cherished friends.  

     And very simply, it is one day of the week that I don't have to explain things.  I can just be myself.

4 comments:

  1. We should go see a movie together this week ;)

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  2. Hi lila. My neurological problem changed my life completely and the family. Everyone changed. With my kids sometimes for the worse but what doesnt kill you makes you stronger and they are both very strong adults. Sometimes a bit too strong with their views and actions. I am not the person i used to be. Full of life and loved to dance. In the 70's i was the disco queen lol, now i can barely dance, however at my son's wedding i was able to stand and move my top half and my friends said i still got the moves.

    And friends did drop off. 2 sisters i had known since i was 16 just dropped me like a hot potato 3 years ago. I couldnt believe it. They began to not ask me to events telling me that they thought i wouldnt be able to make it up the stairs etc. I can do stairs!! And i asked them to not make decisions for me but ask me and i will decide but it never happened. The final straw was when we all turned 50 and they organised a girls weekend away without me. I was almost hysterical when once again they told me that they thought i wouldnt want to go. That was it for me and the parting was angry but mutual. Obviously I made them aware of their own mortality and i made them feel uncomfortable. This is something that is discussed quite often in the group that i belong to. But never fear, the Lord was looking out for me and just a year later another 2 sisters walked into my life (one lived in my street for many years but we had lost contact as its a very long street) These 2 sisters are people that look after and help others at their church that cannot look after themselves and are faced with people with disabilities everyday and therefore i know they will never desert me. Plus we have loads in common with having daughters of the same age. I see them every week and we have lunches and go to the movies. I now know that the other 2 sisters were meant to walk out of my life so that the new 2 sisters could walk in. And along with my loyal friend whom i have know since I was 12, I feel very blessed.

    I also was always basically a loner. I am a cancerian, a true crab and dont like leaving my home too much but once i am out i do enjoy myself. I love to be with people but not for long amounts of time. 2 hours does me also and always has done even before my disorder came upon me. I am very tired after speaking with people for 2 hours and in a way my disorder has been a little bit of a blessing in disguise because now i have a good excuse to leave and I am not lying. I am tired and that is the truth. And I no longer have to make up excuses to not attend certain events. I can just say, no, i think that would be too hard for me and i am left alone. I am very happy that way. I think that if i were a person who had to be socialising all the time then i wouldnt be able to handle what has come my way. I love to be alone or just with my husband and family. I love to read, watch tv and surf the internet and facebook. Which by the way, the latter, was introduced to me by erik! and sometimes i think that was a bad thing lol but just like having a new toy, with facebook, once i had my group of friends, i was right into it, now not so much. But i do check it every day and even tho i am a loner, i do like contact with people in small doses and fb keeps me connected.

    I dont have a social group for my disorder as its a very rare disorder but i should look for a neuromuscular group which is what i have. I do belong to an online group which is helpful but not the same as being with people like yourself.

    For me, I feel normal when i see my neurologist and am sitting in the waiting room. No one stares at me with the walker because we are all the same. I feel the same when i am in a hospital visiting someone or going for tests.

    To sum up, I know EXACTLY how you feel and you definitely know who your true friends are in times of trouble.

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  3. I forgot to mention that i love being with husband also and that i am very lucky that he has stood by me, as many men cant handle these situations and leave. And he has driven me around europe and america. I am very blessed!

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  4. Your hubby sounds like a good man, Maureen!

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